Prader-Willi Syndrome (PWS)
From Parent Voice
View History: Prader-Willi Syndrome (PWS)
Prader-Willi Syndrome (PWS) | |
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| Headline: |
A genetic disorder which features food obsession, shortness of stature and poor muscle tone. |
| Parent Voice Hub: | All Hampshire |
| Area: | National |
| Location: | Derby |
| Telephone: | 01332 365676
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| Email: | admin@pwsa.co.uk |
| Website: | http://pwsa.co.uk/main.php |
| Address: | PWSA (UK)
125a London Road |
| Postcode: | DE1 2QQ |
| Click For Map |
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| Contact Person: |
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| What We Do: |
A registered charity (no. 284583), and the only organisation in the UK which is dedicated to supporting people with Prader-Willi syndrome (PWS),their families, carers, and the professionals who work with them. Mission: We exist to improve the lives of people with PWS and their families, carers and all who work with them. We champion their rights and provide information, training and support to all involved. We stimulate research into the management and alleviation of the disorder. |
| Disability Type: | Physical Disability |
| Related Topics: | Health
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